Helpless doctors

Since I live in the more remote areas of Sweden and the doctors at the regional hospital have their limits, I've been sent to Stockholm (the capital of Sweden) to see some specialists. Between February and June I went there four times with them doing nothing but cutting up the scars over and over again. The doctors speculated a little about alternative procedures, but weren't sure enough, so effectively all they did was to postpone the problem.

My doctors at the regional hospital in Boden (the name of the town next to where I live) were very upset that the doctors in Stockholm didn't do anything other than what they had already done themselves for a long time. The Boden doctors realized that if this continued they would be forced to put in a tracheotomy tube, which of course, since nothing else was done in Stockholm, happened in July 1998. I later found out that I'm the only person in Sweden to suffer from this particular problem to such an extreme extent. So the doctors in Stockholm were probably afraid to do anything drastic or innovative that may have made things worse.

The doctors in Boden were of course very upset by the way I was treated in Stockholm so they used all their contacts, both domestic and abroad, to see what could be done. After the summer of 1998 they contacted a doctor in Göteborg (Gothenburg) in Sweden who has had some experience with this kind of problem, and who has performed a few operations on children with good results.

 

previousindexnext